I recently did a video for my home team with a detailed minute (and sometimes seconds!) analysis.
I thought I should share it here too.
Here is the video of us doing the Salad Spinner Paintings.
The following is an analysis of the thing. It is very long and detailed and mostly copied as-is from the notes I made for my therapists (so it is kind of mostly addressed to them), but it shows how many things a person needs consider during an interaction to be mindful.
Stopping and Referencing
I have noticed when K is in to an activity, you don't have to
do much to get him to stop and reference you. I don't have to talk to
him, touch him or move myself. All you have to do is stop and look at
him. This of course was not possible when we started. He had very very poor referencing skills there years ago.
Did you know that primates are unique in the degree to which their
eyeballs move in their sockets, without physically moving their heads? Maybe that's why we can tell if someone on the bus is staring at us without even looking at them :P
Meeting of the eyes is an opportunity to share an experience together, and build a positive episodic memory of shared experience. It should never be taught just for instrumental purposes eg. to obtain things.
At 0.19
You can see he decided to put purple paint in the thing and although my first instinct is to control him, I have to overcome these things (still!) And then the
paint had settled and water came out. I should have shook it and give
it back to him and slowed down and waited for him to put it in before
starting to spin the bowl. So I made a mistake there.
At 2:10
You can see how mindless he is with language and
context. We assume he is listening we you speak, but it demonstrates
how essential it is to slow down even more.
He catches my finger
pointing across the room. I actually am giving him the plate with one
hand and pointing for him to put it there while telling him to do it.
However he actually gets up and walks over there himself (his automatic
response is to just go where I am pointing). But he notices the plate
and has no idea what I want him to do. He starts going for the stash of
plates on the floor next to me (presumably to start painting the next
plate). I have to grab him, point again and explain again.
This was extremely important for me to watch. It shows you the
extent to which we are ourselves completely mindless around K and
our assumption about how much he is actually listening to and following.
It is a communication breakdown and these tiny things need to be
addressed to make him MORE mindful of what YOU are thinking and be on
the same page as you during interactions.
So lessons to learn from this:
1) Reduce the blah blah. People who hang around with children are often
found constantly talking to themselves. They fill the silence with their
own self talk. It does not work and it ADDS to the noise and confusion
in K's case.
2) Slow down body, close in on K. Before pointing and letting him
get off the chair. I SHOULD have been more mindful of stopping. Maybe
touching his arm, showing him the plate, pointing to the floor and
saying once, put that on the floor.
3) Stop rushing through things, it is not about creating pretty things,
or teaching him how to paint or spin a salad spinner, but about these
tiny little instances of connection and context.
At 2:51
He
starts collecting the paint and I want him to do all the steps himself (starting from putting the plate or paper in there). So I stop him. I
have to say NOTHING and point NOWHERE. He figures it out himself that he
has to put the plate in there first.
This was really great for me to watch, because:
I appreciate how
far K has come in being "present" in an activity with us. He is
doing his best to follow along. This would never have happened a year
ago. He would go jumping away or scream. Just from one little move he
knows that I expect something else of him and I do not have to waste
words or talk.
Lesson:
He is smart. Give him the benefit of the doubt
by shutting up and looking at him. Let him figure things out on his own
when they are obvious like this. It gives him more ownership over an
activity, thereby increasing its reinforcing value. If you speak during these crucial thinking times you preempt his ability to solve things on his own. These are mere seconds, but they count a lot.
In fact he is so clever that you see he even checks if it is actually one plate or two!!
A small challenge - plate doesn't fit.
He tries to fit it and I say nothing. I wait for him to acknowledge that its not going to work.
Eventually he asks me for help. I do give him a visual prompt by
holding up a scissor because I don't want him to go in to the whiny
frustration zone.
So that next time he looks he knows there is
some kind of solution and he can figure out what he needs to do with
that visual prompt. He knows what scissors are for, why should I speak
and tell him what to do?
Initially he doesn't get it even though he glances at the scissors.
So
I try to highlight the problem and not the solution with my words in my
last attempt at letting him figure out that cutting the plate will
solve the problem.
And in the end I show him and I still don't talk. Because you will see there is absolutely no need to talk.
He leans over the table (I think he is trying to regulate himself) and then he just joins in.
Lesson:
Same as above lesson really. Let him join you,
don't dictate every move. Don't say "Uh oh its too big, we need to cut
the plate", in some sing songy childish voice. This is not a kids show
for dumb kids.
You got to admire his focus and regulation while cutting. But its an
advantage K has always had, we didn't teach him that. He likes to
get a job done and he wants to do it well.
At around 4:14
You will see his is singing and if you pay attention you will see he
even makes his little doodly self regulatory sound (those who have been
working with him for a long time will recognise it - he only makes it
for a few seconds after he stops singing). I WOULD NEVER speak when he
is doing this.
Its easy to say things like "Oh almost done", and "You're doing really
well" and all that rubbish, but I felt my voice would make him lose his
focus that is going in to regulating himself while cutting that rather
hard plate.
He references me and smiles when he finishes cutting. Those are
priceless things that I KNOW would have been lost had I said anything.
So clearly he needs no verbal reinforcement from me for having done a
difficult job. It is self reinforcing.
Lesson:
Don't waste your words and verbal praise. Make it count. Give him ownership for what he is doing.
At exactly 4:44
He
realizes it still doesn't fit so I do a very tiny disappointment sound
and he references me and I take over because I don't want him to wait
too long to get to the next thing after already working so hard to cut.
He really just wants to paint and spin.
But his look is important as it mirrors the slight disappointment you can see it in his face.
He
also defaults in to some silliness by taking scissors to his hair!! So
for sure at this point taking things into your own hands is the better
choice. NO need to prolong his agony. You know it was the better
thing to do because he even follows the cutting of the scissors with his
eyes (stim) you can catch that at 4:58.
Lesson:
Use your instincts and what you know about K to make
good decisions on the fly. It will only happen if you had a goal in
mind, were not rushing and were being mindful to HIS tiny little
physical cues. And of course practice.
At 5:03
I could have said, "OK now we can put it in, it
will fit" - but why waste words again? He is sniffing the bowl, GIVE HIM
responsibility for carrying on by WAITING. Don't do all the work
yourself.
He will stop sniffing, reference me, I will smile and we will carry on.
Lesson:
Be
a facilitator for transfer of responsibility to him. Don't be an object
of his control that you just talk, pass things to him like a robot,
then spend half your life bringing him back to an activity, and then
manage behavior.
At 5:30
I wait again for a millisecond for him to pay
attention to my pouring so I can share my excitement with him and we can
be part of the next step together and enjoy it together. Why should I
be shut out? I like salad spinning paint just as much as him!! I
will even make a weird "frrrr" sound while pouring just for fun. He is
curious.
At 5:44
I feel he is pouring too much paint in there, and you can see me make a sound and move my hand, but I have to overcome these needs to control - and I did thankfully because he stops pouring himself. He made the decision that it was enough.
Lesson:
Sometimes we need to trust him more I guess without physically trying to control him.
During
the spinning he references me and I continue to try to catch as many
opportunities as I can for him to look at me without asking or prompting,
and he does. Which is great considering the stimmy nature of spinning
the bowl. He has not shut me out.
He will let me take my turn. I don't have to say something like
"Mommy turn" or anything. Honestly why do we even need to say such
things? He will script it anyway. Its not like he doesn't know what it
means.
At around 7:38
He waits, when I stop, he takes over.
At 8:15
I
expect him to put the second plate on the floor like the first one. And
I have to say nothing. He scripts the words, I just nod. You can see he
is teasing me at one point and my sour face as a result :P (8:24) Which
he thinks is pretty funny and he giggles at 8:26.
At 8:38
I change things up by giving him a choice of paper or
plate. We have never done this activity with a square bit of paper so I
didn't know how he would comprehend the choice.
And you can see he has some difficulty getting it.
At first around 8:41
He is still dysregulated from the simple act
of having to get up and put the plate on the floor...and he is humming
something and floating around.
I WILL NEVER invite him back. Because seriously we are spinning things in a salad spinner. Who needs an invitation?
He notices my body language at 8:42. Its subtle but it says I am waiting for you.
I DO NOT have to point to the chair or say or do anything.
At 8:50
He is like one step ahead of me as he has not even noticed that I wanted him to choose between paper and plate.
So I have to make him notice. He is blathering on about cut the scissors and you lost the scissors blah blah.
AT 8:52
He looks at me and I present the choices.
And
he says "get the plate" - but you know I don't think I was convinced he
made a choice. I don't think he realized there was a choice. He didn't
understand. He just said get the plate as that's what we used the last
time. He sounds worried or slightly anxious, so I didn't push him.
AND at 9:06
He thinks I wanted
him to choose the paper because I took so long to get the plate or the
scissors (because I was thinking of what to do next and analysing the
choice making in my head - and K goes at light speeds so he was
already thinking, "What does she want me to do?", and figures for himself
that he maybe he HAD to put the paper in there.
He looks at me at 9:06 with a look that clearly says "Is this it? Is this what you wanted?"
I didn't want to complicate things so I just went along with it.
I am not quite sure what I should have done differently.
At 9:18
He waits like a good little apprentice for me to cut
the paper so it will fit. I guess in this way I modelled for him same
but different and he is watching and learning.
At 9:23
You
can clearly see that he still wants to put the plate in there - so he
DID NOT at all get the point that it can be either paper or plate. He
has assumed this is some bizarre thing I wanted to do. I ignore him
without talking and just put the paint on the paper at which point he
figures it out.
At 942
He is dysregulated, does a weird smile and does his sounds again. I take over and do everything myself.
It
is almost as if he doesn't trust whats happening but he is going to sit
there and wait out my strange behavior of using paper and not plate.
At 1043
I think he has accepted the paper and goes for the
next step in the process automatically but grabbing the other paper and
scissors.
And at 1059
I make the mistake of bringing out
the plate again. I don't know why, but I think now I should have just
gone on with what was happening. But I think I wanted to fix my earlier
choice making thing - and you see I resort to using language and control
to get him to choose. This is a mistake we make ALL THE TIME with
K.
He continues to cut some tiny bit of paper.
FINALLY at 11:12 my sad need for him to make a choice materializes :P and he chooses the paper and cuts it. Poor K.
Its harder to cut paper. He is so meticulous.
You can see the priceless look of accomplishment on his face upon cutting a straight line at 12:13.
I want to congratulate him so I make a sound and he looks at me and we share his success with smiles and nods.
So we have recovered thankfully from the little confusions.
Some important observations after watching entire video:
1) HOW much it helps to watch and analyse yourself.
2)
I see that I trust him so much more and he is competent. There is no
need to always control everything with words, constantly giving him your
perspective or narrating for him. Respecting another's ability and Trust
are two important aspects of any relationship.
3) How on a daily basis in thousands of moments there are millions of
communication breakdowns, when kids don't know the context, what we mean,
what we want, what we expect. Typical kids are very very resilient and
of course they are not autistic so they are better readers of context
and intentions etc.
They can filter your blah blah and noise and
they can handle the millions of mistakes you make as an adult. BUT with
autistic kids it becomes a HUGE issue to slow down, to be more mindful
of your BODY, your EYES, your speed of movement, your proximity, your
words and your assumptions.
Why limit setting is important to do consistently:
K and I have been to the dark side and back many times. Relationships are
about limit setting, and I think that's the hardest part of working
with him.
Also consistency in limit setting is essential. When therapist comes in
she knows she only has so much time and she wants things to go well and
wants to teach K and can sometimes compromise on behavior for the sake of making him happy or being productive. Unfortunately sometimes you have to go to the
dark side and come back to solidify those limits.
Whether its dragging K out of mcdonalds kicking and screaming,
or making him walk for miles because he wouldn't sit properly with me in
the subway, or dragging him out of a playground knowing his ticket
will go to waste and we will be miserable. You just have to do those
things to get the good moments where he trusts your limits, he
understands your body language etc - and I don't think a person can
effectively teach him unless they have a solid relationship with him in
place because reinforcers only go so far with a kid.
As his parents we have a looooooooooong way to go and he keeps changing!
Wow - finally I can see how the practice (RDI) can be incorporated into our son's program. ABA is working for our son but I can see how "blends" of this practice can help.
ReplyDeleteThank You
I watched five minutes and will come back and watch more later. You are so right about slowing down and limiting comments. It makes a huge difference. It seems like K had trouble regulating himself but once he got into it he did well. I could see so many instances of him referencing you. I love it!!
ReplyDeleteI'm curious. Does your consultant encourage you to think about your role versus his role? Having roles figured out in advance provides a natural way for you to slow down because when it's his turn to do his role, you must wait and, if he doesn't do anything, find ways to communicate nonverbally.