Often,
despite doing all the right things a meltdown is a physically and mentally
draining experience for person with autism and their caregiver. K usually has a
meltdown to the point of exhaustion or until whatever it was that was
overwhelming him or making him anxious has abated by itself.
Sometimes
your behaviour is not the antecedent to the meltdown. The meltdown is about
something that is not under your control and you cannot control the emotional
state of the child. The only option then is to wait for it to be over. In the
midst of the storm all you can do is try to keep everyone safe, and make sure
you are not reinforcing anything negative and not overreacting. This might not
make any difference in the short term but at least you will not make things
worse. All the while you are fighting feelings of embarrassment, failure, helplessness and so on.
Prevention
is the best cure, but not every scenario can be anticipated and you cannot make
every single environment bend and contort to suit the specific needs of your
autistic person.
A few years
of meltdowns and screaming fits have trained me to become relaxed, analytical
and easy going about tantrums, while they are happening, but at the end of it
all I still find myself exhausted. There is effort required to be relaxed,
analytical and easy going, although does not seem like effort while you are in
the moment, I will notice its toll later when things are calm.
Give
yourself time to recover.
Sometimes it
can take several hours to a couple of days.
A feeling of
resentment towards your kid is a natural
human emotion. I am not a saint (yet). And although he has gone back to “normal”
being his usual self, I feel no inclination to be near him or have anything to
do with him outside of necessity after he has screamed himself purple for hours
throwing things around and banging doors.
I feel
strongly, that as a parent you are definitely not allowed to pity your child.
And it will take me some time for me to forgive him despite knowing that his
behaviour is often not under his control.
Unlike a lot of kids on the spectrum his age, K is aware of someone's upset with him. He tries to repair after he has regained his composure. He will follow me around the house saying "Look at my face. You want kiss". Or something of that nature.
I used to
feel guilty about these emotions, but now I recognise this as a part of my
recovery process.
As long as there
is recovery, repair and you are ready to face another battle for the sake of
your child and his/her learning, then why should there be any shame in being
truthful about the difficulty you are facing?
There is no
need to deny the existence of your frustration and paint a false fairy tale
picture of harmony and joy for the world. Whining and complaining is wrong, but
being honest is not.
Autism is difficult to live with. I wish my son was easier
to live with. There is no shame in that.
I think it is a good thing that K recognizes your distant emotions after a meltdown. Some spectrum kiddos are oblivious to that. You are human, but, more importantly, he needs to recognize what meltdowns do to other people. As he learns self-regulation and begins to figure out how to avoid them with your guidances, his desire to avoid a rift will give him even more encouragement.
ReplyDeleteRight now, we're at the "You're stupid" stage, and it's very deliberate. Spoiled girl doesn't get her way, so she argues and calls me stupid.