Here is a nice dose of truth of our every day reality.
Last night I came across someone, in my community, whose family had broken up due to the stresses of raising an autistic child on top of all the other things that normal, middle class to lower middle class people, not blessed with unlimited resources, face every day.
Please watch this important documentary and continue to support the effort of these brave families.
I will tell you now, that after all these decades of advocacy for correct autism treatments, it was only by chance that three years ago, upon diagnosis, we heard of ABA as a treatment for autism by our forward thinking paediatrician. So many families I meet still have not been recommended this by their health care professionals. They are given no advice nor any direction. Instead they are often already entangled in a web of deceit before they even realize what it is that will actually benefit them. We were lucky that we met the right people at the right time, who exposed for us the hoops we would have to jump through in order to get the minimal help for our son.
Now that we are getting that help finally after years of waiting, we are always under pressure to deliver and perform up to certain standards otherwise that funding will be taken away. I am under more stress after getting government funding, finding ways to play all the little bureaucratic games, still jumping through hoops, and juggling a normal family life, waiting for the day this funding will inevitably be removed from the equation leaving us with no options whatsoever.
Unbelievably our contract states that government funded ABA only benefits children for one or two years! This is the level of hypocrisy and red tape that the government uses to protect it's interests and ignore the needs of families with autism.
How would you feel if you were told, that your child would only benefit from one to two years of school?
Medicare's Orphans. from MedicareForAutismNow on Vimeo.
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